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Ethics in Biology, Engineering and Medicine: An International Journal
SJR: 0.123

ISSN Druckformat: 2151-805X
ISSN Online: 2151-8068

Ethics in Biology, Engineering and Medicine: An International Journal

DOI: 10.1615/EthicsBiologyEngMed.2014012056
pages 25-38

Quality of Life and Community Reintegration Metrics in Spinal Cord Injury Patients

loannis-Alexandros Tzanos
Department of Physical and Rehabilitation Medicine, EIAA Hospital, Athens, Greece
Andreas F. Mavrogenis
First Department of Orthopaedics, National and Kapodistrian University of Athens, School of Medicine, ATTIKON University Hospital, Athens, Greece
Evanthia Mitsiokapa
First Department of Orthopaedics, National and Kapodistrian University of Athens, School of Medicine, ATTIKON University Hospital, Athens Greece
Konstantinos Vlasis
Athens University Medical School, Athens, Greece
Konstantinos Soultanis
First Department of Orthopaedics, National and Kapodistrian University of Athens, School of Medicine, ATTIKON University Hospital, Athens, Greece
George Tzanos
Department of Physical and Rehabilitation Medicine, Thriasion Hospital, Elefsis, Greece
Panayiotis J. Papagelopoulos
First Department of Orthopaedics, National and Kapodistrian University of Athens, School of Medicine, ATTIKON University Hospital, Athens, Greece

ABSTRAKT

During the past few decades, quality of life (QOL) and community reintegration have gained recognition as important indicators of the success of variable rehabilitation programs in patients with disabilities, especially those with spinal cord injury (SCI). SCI patients face tremendous challenges in adapting to the physical aspect of injury and to the changes it may bring with regard to living situation, lifestyle, relationships, and adjustment. Current advances in medical care have enabled patients with SCI to survive the initial injury and to prolong their life expectancy post-SCI. In these patients, rehabilitation focuses on the consequences of the injury, with the goal of enabling the patient to be an active and productive member of society, well integrated into the community, and highly satisfied with his or her QOL. In this setting, the need for outcome measures assessing health and QOL following rehabilitation has become increasingly important. Simple outcomes assessing function were insufficient in measuring rehabilitation after SCI, and in capturing the adaptation of perceptions and values in these patients. Additionally, it has been suggested that high levels of QOL reflect positive rehabilitation outcomes, and many agree that QOL should be measured in combination with traditional outcomes assessing functional rehabilitation. In this article, we provide a comprehensive overview of the literature regarding the QOL and community reintegration, the description and identification of their outcome measures, as well as the personal and environmental variants and barriers that affect an individual with SCI in his or her postrehabilitation life. An understanding of these parameters will help rehabilitation doctors to design a successful rehabilitation strategy for these patients.


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